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YOU ARE ABOUT TO REQUEST CONTROLLED ACCESS DATA

The data you are requesting are part of a controlled access submission managed by dbGaP. To complete your request, follow these steps:

  • log in with your NIH or eRA credentials
  • create a research project or amend an existing project at the "My Projects" tab
  • At step "Choose Datasets" in the project wizard you will see a list of all available studies in dbGaP.
  • Select the study/consent groups: phs002041
  • Finish the wizard and route to your institutional signing official.
  • Request review and approval by a NIH data access committee typically takes 24 days from receipt of completed request.
  • When approved, return to dbGaP and download the sequences as directed in the notification email.

Log In to dbGaP

dbGaP Data Download

The management portal to request and download individual level data

Click here to login to the dbGaP controlled-access portal and to begin a project request. For guidance on the development of a data access request to complete project requests, please see Tips for preparing a successful Data Access Request.

Who can apply for access?

Senior Investigators
  • Extramural Investigators must be permanent employees of their institution at a level equivalent to a tenure-track professor or senior scientist with responsibilities that most likely include laboratory administration and oversight. Laboratory staff and trainees such as graduate students and postdoctoral fellows are not permitted to submit project requests.
NIH Investigators
  • NIH Intramural Investigators must be tenure-track investigators, senior investigators, senior scientists, senior clinicians, or staff scientists.
  • NIH extramural scientific staff must have administrative responsibility for the data; have substantial research involvement in the award that generated the data; or need access to carry out research unrelated to their portfolio management responsibilities.

How does one apply?

Senior Investigators NIH Investigators

Why is Access Controlled?

Respect for, and protection of the interests of research participants are fundamental to NIH’s stewardship of human genomic and associated phenotypic data. The NIH Genomic Data Sharing (GDS) Policy sets the expectation that the informed consent under which the data or samples were collected is the basis for determining the appropriateness of sharing data through unrestricted-access databases or NIH designated controlled-access data repositories (e.g. dbGaP).

Questions about the NIH GDS Policy? Review the NIH GDS FAQs or contact NIH GDS Policy staff.

Additional help.

  • For polices governing NIH Genomic Data Sharing (GDS), refer to NIH GDS Policy
  • Questions regarding review, approval, and renewal of data access requests, as well as project annual progress report should be directed to the Data Access Committee (DAC). DAC information can be found here.
  • dbGaP maintains a help desk to assist investigators, institutional signing officials and NIH staff with authorized access management, and answer any questions related to the application process. Contact the help desk with your queries.
  • FAQs and tutorials are also available.